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A literature review to identify factors influencing parents’ knowledge of their child’s CHD
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A literature review to identify factors influencing parents’ knowledge of their child’s CHD
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How parents are told their child may have cystic fibrosis can affect their distress
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Paper examines caregiver burden and quality of life of parents of young children with cystic fibrosis
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Since its roll-out in the UK in 2007, newborn screening programmes to identify cystic fibrosis have proven to help provide growth developments in later life
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Gaining informed consent does not always guarantee that parents are fully aware of the possible outcomes of newborn screening for genetic or congenital conditions